Monday, 17 March 2014

Crushing News

Posted by Juliette

Hi everyone.

We received some bad news some days ago which felt like a huge blow to our hearts and stomachs. To some families living with CF this may be very normal and may, unfortunately for them, happen regularly but for us this is our first time and it made us feel like we were crashing back to earth. That CF is real.

Sammy's cough swab results came back from the lab showing there is a bacteria living inside him. It's called Haemophilus Influenzae. Having a bacterial infection is very bad for Sammy as it could permanently damage areas of his lungs. He is on an antibiotic which is designed to kill this bacteria and we hope so much it will kill the bacteria before it does any damage.

This is a big blow for us as we felt that Sammy had made it to a year (nearly, he's 11 months old) without getting anything more serious then a cold. 
We have been reassured by the CF nurses that of all the bacterial bugs that could have grown this one is not particularly strong and we are trying to hold onto that thought.

Sammy is doing ok and trying to play despite feeling lousy, he is more cling then usual which is to be expected. We will give him an extended course of the antibiotic used to fight this bacteria and have another cough swab taken in a weeks time. We pray that the Haemophilus Influenzae is gone then.

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